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EMPOWERING FAMILIES TO MAKE INFORMED DECISIONS
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Trisomy Advocacy Group (TAG) is a non-profit, 501(c)(3) organization advocating for the Trisomy community by empowering families and the medical community to make informed decisions regarding the care of Trisomy children.
OUR MISSION
Lane, 3 years old, with Full Trisomy 18.
Kayden, 10 years old, with Full Trisomy 18.
Caleb lived 2 1/2 beautiful years with Full Trisomy 18.
Rylee, 6 years old, with Partial Trisomy 18, Mosaic with duplication 9p.
Rebekah, 3 years old, with Full Trisomy 18.
Kayli, 3 years old, with Full Trisomy 18.
ADVOCATE
EMPOWER
EDUCATE
HOPE
"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." ~Margaret Mead
Our website is currently under construction. However, we want the website to be available for families searching for HOPE.
Our GOALS to achieving this mission are:
1) ADVOCATE
- Create an alliance/coalition that brings together parents, volunteers, medical community representatives, and relevant organizations and resources in order to create a cooperative environment that facilitates positive trisomy awareness.
- Take advantage of media, conference, and educational opportunities to bring awareness about the trisomy community.
- Use educational tools, testimonials and real-life examples, resources, and technology to make trisomy information more available to the general public.
- Support medical surveys, white papers, and statistical data collection in the trisomy community and encourage families to participate in sharing information.
2) EDUCATE
- Create a central repository of parent experiential data, pertinent medical information, relevant organizational supports, and ongoing surveys and links and visual mapping to trisomy families.
- Create documents based on parent experiential data to share 'real-world' issues with families facing trisomy diagnosis. Make this information freely available on our website, and down-loadable for sharing.
- Create disclaimers clearly stating this information is not medical advice.
- Create an online directory of trisomy stories in a standard format.
3) EMPOWER
- Create a standard advocacy plan that will allow us to help parents advocate, and more importantly, will help parents to help themselves become their child’s best advocate.
- Ensure all parties are educated on all pertinent laws, rights, and how to connect to local services.
- Create a volunteer base to reach out and help families navigate through the medical process.
